Links
Foundations
- http://www.dannydid.org The Danny Did Foundation
- http://www.dravetfoundation.org The Dravet Syndrome Foundation
- http://www.epilepsyfoundation.org/ The Epilepsy Foundation of America
- http://www.lgsfoundation.org The LGS Foundation
- http://www.epilepsyfoundationgla.org/api/index.cfm The Epilepsy Foundation of Greater Los Angeles
Organizations
- http://www.aesnet.org/ American Epilepsy Society
- http://www.epilepsyalliance.org/ Epilepsy Alliance of Orange County
- http://www.ct-ea.org/ Connecticut Epilepsy Advocate
- http://www.cureepilepsy.org/ CURE
- http://www.dravet.org Dravet.org
- http://www.talkaboutit.org/ Talk About It
- http://www.ninds.nih.gov/ National Institute of Neurological Disorders and Stroke
- http://www.epilepsy.com Epilepsy.com
- http://www.epilepsyadvocate.com Epilepsy Advocate
- http://www.purpleday.org/ Purple Day for Epilepsy
- http://www.naec-epilepsy.org National Association of Epilepsy Centers
- http://www.rechildrens.com/ R*E Children’s Project (Rasmussen's Encephalitis)
- http://www.sudepaware.org/ SUDEP Aware
Technology/Resources
- http://www.cyberonics.com Cyberonics <VNS Therapy, Vagus Nerve Stimulator> (email case manager Patti Shackelford at patti.shackelford@cyberonics.com for more information) Orange & San Diego Southern California residents may contact Stephanie Connolly at 760-277-4960 for more information.
- http://www.emfit.com/ Emfit Monitors (receive a 10% discount using code MYEC)
- http://www.masimo.com/ Masimo Monitoring Equipment
- http://www.pulseoximeteronline.com Pulse Oximeter Online
- http://www.sleep-safe.co.uk/ Sleep Safe – Anti-Suffocation Pillows (currently do not ship to US)
- http://www.medicalert.org/ Medic Alert
- http://www.seizuretracker.com Seizure Tracker utility
- https://writerep.house.gov/writerep/welcome.shtml Write to your US Senator or Representative
Educational
- http://www.epilepsyandmychild.com Epilepsy & my child
- http://www.ada.gov/ Americans with Disabilities Act
- http://http:// www.cdc.gov/Epilepsy/ CDC Epilepsy
- http://www.epilepsyclassroom.com Epilepsy Classroom
- http://www.getseizuresmart.org/ Get Seizure Smart Quiz
- http://www.mommyifeelfunny.com The official website
- http://www.mayoclinic.org/epilepsy Mayo Clinic
- http://www.rxlist.com/drugs/alpha_a.htm Additional Resources RX Drug List
- http://www2.massgeneral.org/aed/ Antiepileptic Drug Pregnancy Registry
Seizure Alert/Response Dog Information
Books
Transportation Links
Complete United States transportation guide:
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